First off I want to thank the best commenters on all of Blogger for the wonderful and comforting comments you left on my last blog. I am overwhelmed by the kindness, encouraging and supporting thoughts you so graciously offered. They really helped me over a rough spot.
I wish I had something concrete to report but I am still in the testing phase. Next one is a bone marrow test. Not even scheduled yet. It will be 30 days--from New Years Day till the 30th of this month before treatment will start. I tried to move things along but that seems to be the schedule. In the meantime I am wiped, weak and laying around like a lump. Thankfully my support group is taking care of all the necessities.
The tentative diagnosis so far is CML--chronic myeloid leukemia. It is supposedly quite treatable. Can't wait to get started and will have the energy to blog again I miss you..
THANK YOU, THANK YOU, THANK YOU. YOU ARE THE BEST.
Patti, that is the hardest part; waiting for treatment to start! I'm so glad that you've got a support system in place to help you with the essentials. And of course, all your blogging friends are here to support you from across the miles, wishing we lived closer so that we could be there in person to help you.
ReplyDeleteThanks for the update. And of course we all understand that updates will be coming as you feel up to them. Feel the love and support coming your way from those of us across the miles.
Carole
The waiting is definitely the hardest but feeling wiped out and stressed comes in a close second. So happy to hear that it's treatable! That's the best news ever!! I'll be thinking of you and sending love.
ReplyDeleteKey up some Tom Petty ("The waiting is the hardest part...") And remember we'll all be here pulling for you and waiting (too!) for your return.
ReplyDeleteYou have a loving and dedicated support team from near and far, Patti. We all send you the very best wishes from our hearts to yours for things to go well. Waiting is definitely the hardest part. Thank you for keeping us posted.
ReplyDeleteThe best is reading it's manageable!! Hang in there Patti
ReplyDeleteThanks for the update, Patti. When a blogger friend (like yourself) stops blogging, I worry. So I'm glad that you're at least up to giving us an update on occasion. Sounds like you have a bit of a wait before more testing and treatment. I'm hearing more and more lately about how long it takes to get testing and treatment scheduled (not sure why this is). But know we're keeping you in our thoughts and prayers. Virtual hugs!
ReplyDeletePlaying the waiting game is hard. I'm glad that you have a diagnosis and treatment is in sight.
ReplyDeleteI am playing the waiting game too. The hip surgery I hoped to have in January is scheduled for March 10. Then I'll have to contemplate knee surgery. I'm falling apart a little too rapidly.
Hang in there.
Patti, I thought we had an agreement that you post at 5 in the morning so I can be the first one to leave a comment... :^) I'm just kidding of course, and very happy to hear from you, my friend! I am sorry you are so weak right now, but what little news you do have sounds hopeful, at least. All we can do is take things one day at a time, and keep you in our prayers, you are certainly in mine. Love you lots.
ReplyDeleteI'm glad you were feeling well enough to update because I have been thinking about you. so much so that my husband asked if I heard how Patti was doing. :-) We all love ya, see? I'm sorry you're weak but I'm still hopeful and praying for you! ((hugs)) 🧡
ReplyDeleteIt was so lovely to see a post from you, and that you didn't block comments! Thank you, dear friend, so I can tell you also that you are in my prayers and that the Medicine Buddha is smiling at you, And so glad to hear that it's treatable!!
ReplyDeleteHang in there! Keep heading towards the treatment plan. It's best when they know all of the labs and figures to prepare the best treatment. Linda in Kansas
ReplyDeleteThank you for the update, Patti. Been thinking of you often. Sounds like the ball is rolling (albeit slowly) towards CML treatment. Medicine has advanced wonderfully and I'm sure the professionals will have you back up and running smoothly for many, many years to come. In the meantime, you'll just have to lounge about, reading, playing games, listening to good music, watching movies and snacking on boxes of chocolates.
ReplyDeleteWarm hugs, Florence.
Oh dear, I'm so sorry to hear you're not well. Waiting has to be the most difficult situation with medical issues. I do hope you are in treatment soon. Glad to hear CML can be treated and your support group is taking good care. Thinking of you and wishing you the best outcome.
ReplyDeleteGood to hear that it is treatable. Sending good vibes to you and all your support system. Just a positive note I hope. My Dad's best friend had this and lived to be 90. May it be so with your precious self.
ReplyDeleteI have all my fingers crossed that this is easily treated and thus curable.
ReplyDelete"Quite treatable" are the magic words . . . may you get your energy back as soon as possible.
ReplyDeleteThank you for updating us, waiting is so difficult and tedious. That is good your support system is in place, plus us your blog friends.
ReplyDeleteI am so glad you were able to update. You have thoughts and prayers in abundance to go with nearby support group.
ReplyDeleteDear Patti, at a time when anyone is feeling under the weather, sick, or physically challenged everything takes an effort and energy that perhaps we don’t have. So thank you so much for posting and catching us up. The word that just grabbed told of my heart was “treatable. “ The waiting must be so hard because knowing what you are dealing with helps with the stress. Just know that all of us are sending you love and positive thoughts and prayers and a deep seeded fault that all shall be well. From Dee Ready and the cats
ReplyDeleteQuite treatable! Isn't that wonderful? Sorry for the slow pace of scheduling treatment, though. Waiting is hard.
ReplyDeleteI am so glad it is very treatable. Wonderful you have a lovely support system in place. Hang in there! Suzanne
ReplyDeleteI am glad it is treatable, dear Patti. Take care and God bless.
ReplyDeleteHi Patty! Wow! I haven't been checking blogs in a while with stuff happening over here BUT I was super relieved to see your Update this morning. And thank you for not blocking comments. We all want to "talk" to you even though we know you can't always answer.
ReplyDeleteI am really, really relieved that you have a treatment scheduled and they're doing lots of tests to make sure they get it right. AND I'm also happy you have a good support group with you to help you through this. Just know we are all thinking about you and keeping you in our hearts and hoping and praying for a QUICK recovery.
Patti, just wanted to say hi and let you know I'm thinking about you. (I'm sure many of us are.) I miss you very much. I hope we get another update from you soon.
ReplyDeleteHi again, Patti... Like Doug, I just wanted you to know I'm still thinking about you too and waiting to hear good news.
ReplyDeleteSending loving thoughts your way, Patti. Treatment can be tough but you are tough too! xoxo
ReplyDeleteOh Patti, I'm so sorry you are ill. As you know I haven't been well either with little energy to visit blogs and comment. I'm doing better now and I hope you will start your treatments soon and that better days will follow. I will keep you in my thoughts. I'm so glad you have a strong support team, it means everything when we who live alone get ill.
ReplyDeleteOh no I've been out of the loop for a while and have only just read this and your last post. I'm so sorry you aren't well and hope and pray whatever you have is easily treatable. I'm glad you have a group of friends supporting and helping you. Thank goodness for that. Keep strong and I will pray for you.
ReplyDeleteHappy to learn that you are heading in the direction of something that is treatable. Thanks for keeping us posted.
ReplyDeleteDon't leave us hanging!!
ReplyDeleteA new post would be appreciated when you can.
I'm still here thinking about you, Patti. Sending you love from Hawaii.
ReplyDeleteAnd thank you for keeping your comments open so we can still write to you.
ReplyDeleteHi Patti, Just wanted to let you know I've been thinking about you. I'm hoping you are getting the care you need. Don't worry about another blog post! The most important thing is to focus on yourself right now. I'm hoping you have the supports you need in place to see you through this difficult journey. We all love you, and wish you nothing but the best ❤️.
ReplyDeleteCarole
We're all still thinking about you, Patti and sending our love and wishes for a quick recovery.
ReplyDeleteI think of you daily, Patti - especially when I see the foxes.
ReplyDeleteI was just stopping by to check on you, Patti. Sending you love and wishes for good news.
ReplyDeleteHi Patti; I was visiting your archives and saw Kay had left a recent comment, so I thought I'd say hi too, let you know I think about you everyday and hope you're hanging in there. We sure miss you. PS. I enjoyed your post from Sept 2013 about laying in your hammock while enjoying your neighbor's mower. Your least favorite sounds gave me a good chuckle. :^)
ReplyDeleteHi Patti. Another of your faithful readers just checking in, wanting to let you know that we are all thinking of you. I'm hoping that you are getting the care that you need, and that you are hanging in there. Sending love and hugs,
ReplyDeleteCarole
Hi Patti. Just checking in to let you know that we're all cheering you on, hoping that you are doing ok. We miss you of course, but the most important thing is to take care of yourself. Sending love and hugs, Carole
ReplyDeleteThinking of you and hoping that you're dealing well with treatment and feeling better. xoxo
ReplyDeleteHey Patti!
ReplyDeleteKay here and I saw the post from ANOTHER Kay from Hawaii where she mentioned your good advice on your blog! See, how you are helping folks from posts that you have written from years ago? That's wonderful! Hope your treatment is going well and you get TONS of well wishes on here! xxx
Your silence is concerning. It has been almost three months since your post and I know you are busy with medical appointments and treatments. Just know you are missed and loved and being prayed for.
ReplyDeleteHi Patti, You know I'm keeping you in my heart and thoughts. I've been away on a trip for 3 weeks and thought of you even then. I hope all is going well. Just know we're all thinking about you.
ReplyDeletePatti, I just wanted to say hi and tell you I was thinking about you. I don't know if you check your blog's comments anymore, but I still visit here a couple times a week to see what (if anything) is new. I'm sure I'm not the only one who misses you very much.
ReplyDeleteHi Patti, I'm still here thinking about you and hoping to hear from you soon. Just know we're all here and caring.
ReplyDeleteI wish I could send you a funny card or a bouquet of flowers or a box of candy that would be as sweet as you. Just so you know you are missed by a whole batch of us. Hope, hope, hope all is moving forward for you and testing is going well. Love to our best blogger friend.
ReplyDeleteI'm just back to send you my love with wishes that you are doing well and recuperating comfortably. Please know you are in all our thoughts.
ReplyDeleteI've been away for a while and I completely missed that you are ill. I am sending up prayers for good news and good treatment. I hate the way doctors work on their own sweet time, knowing how crazed we can get waiting for news. I hope you have had good comunication with them. Will be thinking about you.
ReplyDeleteMissing you and thinking of you. Hope you are doing well Patti!! Your Marlins sure are doing well. Hope you are able to watch a few games.
ReplyDeleteHi Patti. Just wanted to let you know that you've been in my thoughts. It's been a while, so I'm guessing that this journey is a tough one for you. I'm hoping you've got the care and supports in place to provide for you what you need, both physically and emotionally.
ReplyDeleteYou've got a very loving, loyal following. We all care about you and are hoping you are doing ok.
May you find peace and comfort knowing that you've got many, many friends rooting for you and hoping for the best.
Lots of love and hugs ❤️
Carole
Hello, Patti... I just returned from Japan and suffering from jet lag but wanted to see if you're back yet. Please just know how much we're all caring about you and hoping you're getting the best care possible.
ReplyDeleteHi Patti-- Been thinking of you and wondering how you are doing. I hope all is going well for you. I miss your presence here in blog-land, and I hope that you return soon. Take care there, dear friend.
ReplyDeleteJust now read the medical challenge you are facing. I do hope all is going well. Will be thinking of you and sending positive healing vibes your way.
ReplyDeleteHoping you are feeling better and all is going well. Sending good thoughts your way.
ReplyDeleteHi Patti, I just wanted to check in and let you know I was thinking of you. (If I see my comment on here, I'm guessing you're still here.) I still visit your blog a few times a week, just to look at the other blogs on your blogroll and sometimes to dip into your archives. If you saw someone reading June-Aug 2011 posts a few weeks ago, that was me. :^) Anyway, I know you've been fighting a real uphill battle and I just wanted you to know you're in my heart and best thoughts. My cousin's husband battled leukemia for the better part of a year but he DID pull through. I know everyone is different, but I'm just going to keep hoping for you. Your old friend, Doug
ReplyDeleteJust checking in to say hello and tell you that I've been thinking of you and hope all is okay there. You are missed here in blogland. Please take care, Patti.
ReplyDeleteKay of Musings: Oh gosh, Patti…. I hope you’re doing OK and that things are starting to really improve for you. Just wanted to let you know you’re still in my thoughts and hoping to hear from you soon. Sending you love from Hawaii.
ReplyDelete